Carter & Skye
Carter and Skye’s mum Karen shares her family’s story — from searching for answers to her children’s illness to diagnosis of Shwachman-Diamond Syndrome, an inherited Bone Marrow Failure Syndrome.
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DJ’s experience with Severe Aplastic Anaemia
For many patients with Bone Marrow Failure Syndromes, a bone marrow transplant is a hope for a cure. But this treatment comes with the risk of serious complications. Many patients experience poor graft function, a potentially life-threatening complication where the transplanted bone marrow doesn’t produce enough mature blood cells. Patients can develop infections, require multiple […]
Read my story Matty & Cheryll
Meet Matt and his grandmother Cheryll who he affectionately calls Honey. Cheryll talks about Matty’s journey with Fanconi Anaemia — an inherited Bone Marrow Failure Syndrome — and her hopes of a cure.
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